Wednesday, June 24, 2009

We leave the NICU for SF


Today I'm grateful for...
Shari
ng my thoughts with my older sister
Being in a healthy relationshi
p
Seeing my baby girl grow everyday
Enj
oying the sunny weather
Spen
ding time with my kids

I got to the NICU early this morning to see Lourdes. Lulu had some appointment
s to make, so she was to join me a little later in the morning. Lourdes looks good today. She was changed to a different ventilator some time before I had arrived. This new ventilator was easier on Lourdes' lungs. I took this as a good sign, going from the stronger ventilator to one that she doesn't need as more airflow to complete her oxygen requirement. Though today Baby Lourdes still had a cloudy chest x-ray and they would be giving her more of the diuretic medication to hopefully clear up those lungs? They doctors haven't tried again the medication that we're praying will close the hole between the her heart's chambers. They have talked about that being done tomorrow?

Wh
en Lulu arrives she was excited; something having to do with being seen in San Francisco today at 3 PM. It seems after some phone calls to a friend that had had breast cancer years earlier Lulu was recommended to see a breast surgery specialist (we actual found out later that he was one of the founders in the UCSF breast cancer clinic in the 80's). He could see her today in his office at 3 PM. I said, "great, let's go now". So, I made some phone calls to shore up with the kids care, and a emotional call to the office to let them know that somethings come up and I needed to have them call the patients and reschedule their appointments. (later I found out that the patients were so understanding with having to modify their life's to fit ours, I guess this is one of those "I'm grateful for times?) After 10 minutes of confirming we we able to go, we left St. Mary's as quickly as possible as I knew that even without hitting traffic the drive would take us 4.5 hours, and it was approaching 10:30 already!

I knew that we were going to go to SF, see the specialist, and he was going to say that this was going to be alright. It just wasn't right to think any different.




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